Infant with Reflux Hates Thickened Formula

Updated on May 13, 2010
J.B. asks from North Sioux City, SD
6 answers

My son is 2 months old. Because of food allergies he could not have breast milk. He is on Neocate that needs to be thickened with rice cereal, and he absolutely hates it. When I add pear juice (for constipation) he will happily eat. I don't want to give him juice in every bottle to get him to eat. But, on the other hand feeding times are miserable. Some days he will refuse to eat for hours and just cry from anger and hunger.
Is there a parent that has been through this that has a suggestion? Thanks for any help.

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So What Happened?

I am really sorry I posted this question. Not one of you understands my situation, nor is sensitive to the distress this has caused our entire family.

Bridget- I was devastated when I was told that I could no longer breastfeed. I tried everything I could think of, calling everyone but the president himself for answers to help me continue to nurse my son. I cried just reading your response because even after 2 weeks of drying up it is still very emotional for me.

Erika S- he is allergic to milk and therefor can not have milk based formula. Neocate is an amino acid based formula especially designed for babies with food allergies.

Erika L- If you research GERD at all you will see that the majority of doctors do recommend thickening formula with cereal. The reason: babies with GERD tend to lose weight and "fail to thrive" because they can not keep their food down and even refuse to eat because of the pain. It is better to get the food in them and worry about the allergies later then to allow the baby to starve. Obviously I would prefer to not feed him any thing but formula, and in fact I desired so desperately to nurse my son for more than the 5 weeks we were able. Please. I don't need anyone telling me all the bad things I am doing for my son by giving him other foods. If he didn't need it, and if it wasn't recommended by his ped. and GI doctor I most certainly wouldn't do it!
Neocate is very constipating, add rice cereal which is also constipating and you have major problems. That is why he needs an ounce or 2 of pear juice each day. Otherwise I will have to continue to give him enemas and suppositories several times a day, just like I did before we were told to give him juice.
I realize the risks of feeding him "solids" however, he has shown no problems with pear juice, or rice cereal. It isn't like I am spoon feeding him everything under the sun.
I have spent countless hours searching the internet for answers. I have spent countless hours calling doctors, La Leache League, family and friends to find answers for my son. I am looking for someone who has been through what my son is going through because it is not that uncommon and instead I get complete insensitivity to the pain my husband, my 2 daughters, my infant son, and myself have gone through.

Thanks Crissy and Natalie. His formula has to be thickened because even if we kept him upright the majority of his feeding would come up. The thickened formula is heavy enough to stay down.
While breastfeeding I cut out all dairy and wheat and baby only showed minor improvements. There was still another allergy we were unable to find.

More Answers

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L.S.

answers from Omaha on

My son had reflux when he was about that age. My pediatrician gave him zantec (spelling?) and also put him on Alumentium (spelling?). When it came to introducing food, we did not start him on cereal. I believe we did green vegetables first. If I were you, I would do my own research on it and see if you can find something on diet. It took my son about one year to grow out of it. When I had my next child, my pediatrician said she had a greater chance of having the same problem so we just put her on gentle ease formula to prevent any issues. Hope this helps.

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E.I.

answers from Duluth on

i had to look up neocate. :( poor kid! you know, infants can be allergic to rice cereal. i know a friend of mine whos infant, from the day he was born, could not have rice, corn and various other foods. mom breastfed, and cut those things from her diet. it is possible, but its hard. breastmilk helps "cure" intestinal trouble, but formula can help as well, especially a kind that is made for infants with allergies (at least one can hope!) but one thing i know for sure is that if an infant is under 4-6 months old, solids are NEVER supposed to be recommended, for an infant with allergies, i cant imagine ever giving solids before 6 months.

for infants in general, the american academy of pediatrics recommends NO SOLIDS of any kind until signs of readiness are shown (sitting on their own, not spitting out, whatever check www.askdrsears.com for the "list" of readiness cues) which usually occur between 4-6 months. for infants with a risk of allergies, its usually recommended that you wait as long as possible toward the 6 month mark. for infants WITH allergies already diagnosed, you should probably not even think about solids of any kind until 6 months. i mean, do what feels right, but i would honestly be more worried about your infant and his digestive system being protected and finish developing, than making sure hes getting solids for any reason. just a side note, it will NOT make him feel full longer and it will NOT help him sleep longer. infants wake often to eat because their stomachs are only the size of their fist; they fill quickly and they empty quickly. this first year your son will double his height and triple his weight. hopefully this is the only time in his life that his growth will be to that magnitude. think about it for yourself, hypothetically, if you had to double your height and triple your weight, how often and how much would you have to eat? its huge. dont neglect this important knowledge. he needs to eat often. you dont become a parent to sleep well! we all sympathize with you.

just for comparison, the world health organization recommends EXCLUSIVE breastfeeding until 6 months of age, formula feeding should be treated the same; exclusive liquid until 6 months. my son with NO allergies was 5 1/2 months when he was literally ripping the spoons out of our hands, and was adequately ready. this comment on the w.h.o. can be found on the neocate's own website, though im sure the world health organization has its own website you could look at as well.

if your doctor suggested the cereal, i would highly recommend getting a second opinion. i have a hard time beleiveing a doctor would ever recommend solids for an infant at 2 months, but i have an even harder time believing that a doctor would recommend solids for an infant with extreme allergies. this can be very harmful to your baby! typical infants are born with extremely sensitive and underdeveloped digestive systems, then they start maturing as they grow, which is why no solids are recommended before a certain age. solids can harm and irritate the digestive system in normal infants, i cant imagine how much worse it would be in an infant with allergies!

do the best you can ok? i am so sorry that you are having to deal with this kind of thing with your baby at such a young, tender and vulnerable age. i wish you luck moving forward, and i hope that you can figure out what works best for your baby.

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C.O.

answers from Minneapolis on

Is there a reason it has to be thickened? I had two girls with terrible reflux and neither had thickened formula. I tried it once on each girl and they both ended up puking (like happened multiple times every day) and because the formula was thickened it ended up clogging up their noses and was very scary because I had to suction them out. I never offered it again. I just always kept them propped up or held them. They slept on reflux wedges or in their car seat if we weren't at home for some reason. I seriously never laid them flat.

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E.S.

answers from Minneapolis on

Have you tried Enfamil A.R formula (or the Target generic equivalent)? Our son had lots of problems with spitting up and we had to switch him to a thicker formula. The Enfamil A.R. formula has the rice added to it so you don't have to bother with adding rice cereal. Our son hated the taste of rice cereal, but took the A.R. formula just fine.

B.D.

answers from Lexington on

J.,

I feel for you as I've been through this three times with my kids. At two months it is absolutely not too late to breastfeed. Breastmilk is best for all babies, but especially important for those with reflux and/or allergies. I had to drastically change my diet with my oldest, but it was well worth it. I recommend finding a good lactation consultant, and contacting La Leche League. They were my saviors with my first baby. If your little one has that much trouble with allergies, there is a big chance that he will continue having issues with the formula and cereal. Plus, breastmilk is considered the "easy in, easy out" food. Formula stays in the tummy much longer and is harder to digest, increasing the llikelihood of it coming back up. There is an herbal remedy from Dr Christopher called Kid-E-Col that you may find helpful. Also, some babies that seemingly have issues with GERD actually have a hiatal hernia, therefore massage can work wonders. Regardless of the cause, I suggest keeping your baby upright after feedings, and wearing him in a sling or carrier. That will keep him calmer and happier, which will also help keep the food down. Please, please reconsider breastfeeding. It can make a world of difference. I wish you all the best.

B.

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N.H.

answers from Minneapolis on

I saw your responses to the other posters. If it is milk that he is allegric to cutting out milk products from your diet should work out. I don't know if you tried that or not. Also, once you have lactated you can always start lactating again. It's a matter of stimulation. Good luck. I hope that this helped or maybe you got help from your dr.

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